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PARTICIPANT INFORMATION SHEET

This document is also available for download here: https://bit.ly/ExperiencesOfVictimisation_Study1_ParticipantDocuments

Experiences of victimisation

You are being invited to take part in research on any adverse experiences that some people may have had because of being a member of a minority group, such as racism, discrimination, verbal abuse, physical abuse, or hate crimes or hate incidents.

Researchers at the University of Edinburgh, School of Health in Social Science, and from the University of West-Scotland and University of Roehampton are taking part in this research. Liesbeth Tip from the University of Edinburgh will be leading on this study and be the contact person if you have any questions (Liesbeth.Tip@ed.ac.uk).

Before you decide to take part it is important you understand why the research is being conducted and what it will involve. Please take time to read the following information carefully.

What is the purpose of the study?

The purpose of the study is to better understand how people experience the group(s) they belong to, and how this relates to their feeling comfortable around others. Additionally, we are interested in hearing how any adverse experiences because of being from a certain (minority) group has affected people’s wellbeing and mental health. We also would like to hear about people’s opinions on how we can best support those affected by victimisation, and what is needed to help people witnessing victimisation to be able to intervene or support the victims, and what ways people think would be preferred.

Why have I been INVITED to take part?

You are invited to participate in this study because you are a member of the general population. To take part you need to be over the age of 18, be a resident of the UK, and have a sufficient  understanding of the English language.

Do I have to take part?

No – it is entirely up to you. If you do decide to take part, you are still free to withdraw at any time and without giving a reason. Deciding not to take part or withdrawing from the study will not affect you in any way. You can withdraw by exiting the survey at any time. Please be aware that the survey will have captured the data up to that point, however if you have not completed the survey up until the end, then we assume you do not want your data to be used, and will not include anything that you entered in any of the study analyses. For this reason, the final question of the survey will ask you to confirm your consent for your data to be used. Once your completed survey has been submitted it will not be possible to withdraw your data.

If you do decide to take part, please keep the information from this Information Sheet; you can download a Pdf version of this document here [insert hyperlink to Googledrive where a pdf from the PIS is stored]. You will be asked to confirm your agreement to participate on an Informed Consent Form before the start of the survey to show that you understand your rights in relation to the research, and that you are happy to participate.

What will happen if I decide to take part?

You will be asked a number of questions regarding your sense of belonging to groups; experiences with victimisation; if applicable, what support you received and how satisfied you have been with the ways you have been supported; any vicarious experiences with victimisation and how you responded to these incidents; and recommendations for bystander interventions and support of the victims.

The online questionnaire should take around 30-40 minutes to complete. You can skip any questions that you prefer not to answer.

You can choose to exit the survey and get back to it later, and you can go back in the survey and change any answers if you changed your mind.

Respondents who use the option to complete the survey later are taken to a page giving the survey’s closing date and a ‘finish later’ URL.  They can use this URL to return to the survey at the page on which they clicked the ‘Finish later’ link. They can either bookmark the URL in their browser, or ask for the URL to be emailed to them. Please be aware of this when you use a shared computer, and do not use a bookmark option to ensure safety of your data and participation.

If you leave the survey and do not return to complete before <the 30th of March 2022>, the we will assume that you have withdrawn from taking part and we will not use any of your data that the software program has collected.

What are the POSSIBLE benefits of taking part?

There are no direct benefits, though filling out the questionnaires may help provide you with some insights in your experiences and reflect on how these have affected you, and options for support that may help you cope.

By sharing your experiences with us, you will help the research team to better understand the impact any experiences of victimisation may have on wellbeing and mental health, and ways others can help to mitigate the effects of these experiences, both in the situation and afterwards.

Information from this study will be disseminated as much as possible to suitable audiences to share the knowledge we gather through this study. These may include clinical practitioners, researchers and members of the general public, and any other relevant stakeholders. Information of this project may inform (policy) reports and support future research that can help improve understanding and formulate guidelines for supporting those that may have been affected by victimisation.

Are there any risks or disadvantages associated with taking part?

There are no significant risks associated with participation. However, in some cases, thinking about experiences of victimisation may cause distress. For this reason, a list with resources is included at the end of the survey that may be helpful. They are also available by accessing this link:

https://bit.ly/ExperiencesOfVictimisation_Study1_ParticipantDocuments

Will my taking part be kept Confidential?

All the information collected during the course of the research will be kept confidential and there are strict laws which safeguard your privacy at every stage.

How will we use information about you? 

We will not need to use any identifiable information from you for this research project. The information you provide to us in answering our questions will receive a linked the anonymous identifier that will be allocated to your online survey. No name, contact details or initials will be gathered. People will use the anonymous idenitier to do the research or to check your records to make sure that the research is being done properly.

We will keep all information about you safe and secure. There is no need to share any personally identifiable information to take part in the study. Your data will only be viewed by the researchers. All electronic data will be downloaded from the Online Surveys software program and after downloading, be stored as a password-protected computer file at the University of Edinburgh secure server that is only accessible to these researchers. Your data will only be viewed by the researcher/research team.  The anonymous aggregated dataset of all participants together may be shared with other researchers in the future once ethical approval is in place to work with these data.  Once we have finished the study, we will keep some of the data so we can check the results. We will write our reports in a way that no-one can work out that you took part in the study.

What are your choices about how your information is used?

  • You can stop being part of the study at any time, without giving a reason, but we will keep information about you that we already have if you have submitted your survey. 
  • We need to manage your records in specific ways for the research to be reliable. This means that we won’t be able to let you see or change the data we hold about you.  

Where can you find out more about how your information is used?

You can find out more about how we use your information 

Please be aware that if you disclose identifiable information about persons or organisations about victimisation, that could be considered criminial or indicate you or someone may be at risk or harm, this may mean that the research team would be professionally and ethically obligated to take action. For this reason, it is strongly recommended to not include any identifiable information in your answers of the open-ended questions in the survey. You will be reminded to not include identifiable information throughout the survey.

If you would like to receive a study summary you can click on the link at the end of the survey, which will guide you to a new survey where you can input your details. This way, your details will be securely stored and kept separate from your study data so that your email details can not be linked to your data. You will also be invited to leave your email address if you would like to receive information about a second survey (linked to this one). Again, your email addres will be stored separately to your study data. Opting to receive this information does not mean that you are obligated to take part in the second stusy.

The University of Edinburgh is the sponsor for this study based in the United Kingdom. We will be using information from the survey in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. The University of Edinburgh will keep the anonymous information from the studyfor a minimum of 3 years after the study has finished and this may be used in future ethically approved research.

What will happen with the results of this study?

The results of this study will summarised in published articles, reports and presentations. It is further intended that findings will also be shared with the public in lay format, through summary presentation of findings via social media (such as Twitter, Facebook, Instagram etc.) and, if possible, presented on blogs and through Science Fairs, and possibly in interviews with the media or shared via media articles when requested, and with relevant (grassroots) movements such as anti-racist organisations. Findings may also be shared with schools, city councils or local or national governmental institutions. A presentation of findings may also be shared via a video on Youtube or Vimeo.

 The research team will make sure that your data will not be identifiable from any published results. A summary of the findings from the study will be made available to participants who indicate they would like to receive this. This summary will be sent to participants by email. If you would be interested in hearing back about the results, please follow the link at the end of the survey that will direct you to a different survey where you can input your details.

WHO IS ORGANISING AND FUNDING THE RESEARCH?

This study has been organised by Ms Liesbeth Tip, Dr Simona DiFolco, Dr Jingni Ma, Dr Roxanne Hawkins and Dr Erifili Efthymiadou, and sponsored by the University of Edinburgh.

WHO HAS REVIEWED THE STUDY?

The study proposal has been reviewed by University of Edinburgh School of Health in Social Science Ethics Committee.

WHO CAN I CONTACT?

If you have any further questions about the study, please contact the lead researcher, Liesbeth Tip: Liesbeth.Tip@ed.ac.uk

If you would like to discuss this study with someone independent of the study please contact Dr Angus MacBeth: Angus.MacBeth@ed.ac.uk

If you want to file a complaint then please contact Head of School, Prof Matthias Schwannauer: M.Schwannauer@ed.ac.uk.

PARTICIPANT CONSENT FORM Study Title: Experiences of victimisation Researchers name and contact details: Liesbeth Tip – Liesbeth.Tip@ed.ac.uk You reserve the right to withdraw from the study at any time during the study. If you have any questions or other concerns about this study, you can make contact via the details provided above. If you feel you need support, please refer to the resources that are available in the mental health support document here:

https://bit.ly/ExperiencesOfVictimisation_Study1_ParticipantDocuments

1.1. I confirm that I have read and understood the Participant Information Sheet (Version 1 dated 09 November 2021) for the above study. Required
a.1.a. I have been given the opportunity to consider the information provided, ask questions and have had these questions answered to my satisfaction.
b.1.b. I understand that my participation is voluntary and that I can ask to withdraw at any time without giving a reason and without consequences. I am aware I can stop any time before submitting, and if I don’t complete the survey my results will not be included in the research. Required
c.1.c. I am aware that if I would provide identifiable information about persons or organisations, depending on the information provided about victimiation experiences, the research team may be professionally and ethically required to take action – I am aware the research team recommends to exclude any identifiable information from my responses for this reason Required
d.1.d. I understand that my anonymised data will be stored for a minimum of 3 years and may be used in future ethically approved research Required
e.1.e. I understand that relevant sections of my data collected during the study may be looked at by individuals from the Sponsor (University of Edinburgh), where it is relevant to my taking part in this research. I give permission for these individuals to have access to my data Required
f.1.f. By ticking this box I agree to the above consent points and I agree to take part in the above study Required